Pai Participation Agreement Form

A total of 17 evaluation forms were submitted by professionals, four of which did not (both) have evaluation forms. Subsequently, six young adults already in care completed the IAP-YA. Table 1 shows the characteristics of the participants. Ophthalmological diagnoses are categorized according to the eye structure affected by the disease, as there has been a large variation in ophthalmological diagnoses. Examples of structural diagnoses are cerebral visual impairment and cerebral palsy, while examples of retinal diagnoses are hyperopia, retinitis pigmentosa and Stargardt disease. Among the evaluation forms and comments/suggestions from parents, children, young adults and professionals, the most important topics were IAPs and PAI-YA, and most of the points were clear. The instructions for the questionnaires have been slightly modified to clarify how the questionnaire should be managed, as well as when the “Unapplicable” option should be selected. In addition, the language used in the questionnaires has been modified to make it easier for parents, children and young adults to understand (for example. B, words such as rehabilitation needs/goals have been replaced by words such as rehabilitation issues). Based on the proposals of participants and experts, minor changes were made to the content of the questionnaires, for example. B the order of articles, the clarity of articles and the addition/removal of certain items. Although specialists lacked information on the course of pregnancy, childbirth and development in the early years of life, questions related to these issues were not included in the IAP-CY/PAI-YA, as they do not address activities and participation, but health conditions and/or personal factors, often assessed earlier.

PAI-CY was administered as part of the normal admission procedure by low-vision rehabilitation centres. Parents with a child in one of the IAP-CY age group completed the online questionnaire prior to the rehabilitation admission procedure. Children between the ages of 7 and 17 completed the corresponding questionnaire during the admission procedure with a visual centre rehabilitation specialist. Immediately following the IAP-CY assessment, parents and children were asked to complete an IAP-CY assessment form and its evaluation to identify and improve the acceptability and feasibility of the IAP-CY. The tradesman involved in the authorisation process was also asked to complete an evaluation form through the IAP-CY for the questionnaire completed by the parents and, if necessary, by the questionnaire completed by the children. Due to a longer-than-expected admission period, the first author also administered IAP-CY to a small number of participants; These participants have already been enrolled in low-vision rehabilitation centres. Children were visited at home to manage the IAP-CY, while parents completed the online questionnaire. Five parents lacked points in the questionnaires. B, in terms of visual field function (0-2 years), energy management (7-12 years), computer/computer and smartphone use (7-12 years), function of extracurricular activities (7-12 years) and use of visual aids (13-17 years). Two children reported that they lacked objects while swimming (7-12 and 13-17 years) and one child in terms of self-supply (13-17 years). Three young adults reported items that were missing, z.B. in terms of stairs and stairs, trips to unknown places and getting closer to someone you love.

Two experts stated that 3-6 year olds PAI-CY were more suitable for 3-year-olds than for 6-year-olds, and that professionals lacked articles related to reading and writing, school behaviour, orientation and mobility, and to complete the tasks of this questionnaire. Two experts lacked information on pregnancy, childbirth and development in the early years of life.

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